Sam Berns was 17 when he gave this TED talk and he passed away a month after he gave it. It is a must-watch!
Sam Berns had progeria – a rare disease that affects about 350 people worldwide. Progeria is a rare, rapid aging disease with which Sam was diagnosed at the age of 2. He was featured in the documentary Life According to Sam, which will premiered on HBO on October 21, 2013.
Progeria’s effects include lack of weight gain, tight skin, stunted growth amongst others.
Sam, who had a passion for playing a ‘snare drum’ which is a pretty heavy musical apparatus for Berns who weight just 50 pounds. But in this talk he talks about how he did not give up on his dreams and lived a happy life irrespective of what he was going through physically.
His parents, Scott Berns and Leslie Gordon, both pediatricians, received their son’s diagnosis when he was less than two years of age. Roughly a year later, they established the Progeria Research Foundation in an effort to increase awareness, as per Wikipedia.
A month after he gave this talk, he passed away on Jan 10, 2014. His talk is titled ‘My Philosophy For A Happy Life.’ This talk has been viewed for more than 24 million times!
This brave lad helped spread awareness about the disease, bravely.